My Bout with Multiple Myeloma
Tuesday, May 16, 2017
Mojo Monday 497
This is my first time posting on a card link up (mojo monday). I am still very new at paper crafts, but I love it!
Monday, May 15, 2017
Monday, November 18, 2013
Nov 17
Had chills this morning. Only lasted about 15 mins, no fever.
Had my routine check in today. When I told them about the chills, they added a CBC to my labs. They also started me on an i.v. antibiotic as a preventative measure.
I am sick to my stomach 24/7. I don't take anything for it because I am tired of taking medicine. But....... this is getting old really fast. I think I may have to break down and start taking something for it.
I'm tired and don't eat much. Tastes buds are shot again. Living on yogurt, kefir and crackers and cheese today.
Dosed off and on most of my day.
We were supposed to get a bad storm here in Nashville today. Thankfully, all we got was a whole lot of rain.
Had my routine check in today. When I told them about the chills, they added a CBC to my labs. They also started me on an i.v. antibiotic as a preventative measure.
I am sick to my stomach 24/7. I don't take anything for it because I am tired of taking medicine. But....... this is getting old really fast. I think I may have to break down and start taking something for it.
I'm tired and don't eat much. Tastes buds are shot again. Living on yogurt, kefir and crackers and cheese today.
Dosed off and on most of my day.
We were supposed to get a bad storm here in Nashville today. Thankfully, all we got was a whole lot of rain.
Nov 16
Just a routine check up today. Labs. Nothing special. They say I am doing fine.
Jillian goes home today :(
Mark got here to relieve here around noon.
If the other days are as uneventful as this one, I don't know how often I'll write,
Jillian goes home today :(
Mark got here to relieve here around noon.
If the other days are as uneventful as this one, I don't know how often I'll write,
Saturday, November 16, 2013
Nov 15th - Actual Stem Cell Transplant
Today was the big day. And boy did it start off with a bang.
Unfortunately, I got hit with what the nurses call "melpalan misery". Just a nicer way of saying major diarrhea!! I'll spare you the awful details.
Got to my appt at about 11:00. Got my vitals taken and then the hooked me up to an i.v. bag of potassium. Mostly it was a waiting game.
After awhile the nurse came in a gave me an i.v. push of ativan and benadryl. Nice. That combo actually let me catch upon some much needed sleep.
When the N.P. infused the stems cells into my port it did hurt. It felt like the brain freeze you get after drinking a slurpee too fast. The cells were thawed, but still pretty cold. It also made my stomach feel bloated and crampy. Thankfully those symptoms were fleeting. I got four bags of cells infused. I must have fallen asleep after that fourth bag, because the next thing I knew, it was 4:00 and the nurse was telling me I could go home.
Everything was a success. Now I just pray God will have mercy on me and give me a few more years with my family. But live our die, I am His and He knows best. I fully trust in that.
Jillian has been such a sweetheart. I am so proud of her.
Unfortunately, I got hit with what the nurses call "melpalan misery". Just a nicer way of saying major diarrhea!! I'll spare you the awful details.
Got to my appt at about 11:00. Got my vitals taken and then the hooked me up to an i.v. bag of potassium. Mostly it was a waiting game.
After awhile the nurse came in a gave me an i.v. push of ativan and benadryl. Nice. That combo actually let me catch upon some much needed sleep.
When the N.P. infused the stems cells into my port it did hurt. It felt like the brain freeze you get after drinking a slurpee too fast. The cells were thawed, but still pretty cold. It also made my stomach feel bloated and crampy. Thankfully those symptoms were fleeting. I got four bags of cells infused. I must have fallen asleep after that fourth bag, because the next thing I knew, it was 4:00 and the nurse was telling me I could go home.
Everything was a success. Now I just pray God will have mercy on me and give me a few more years with my family. But live our die, I am His and He knows best. I fully trust in that.
Jillian has been such a sweetheart. I am so proud of her.
Friday, November 15, 2013
Nov 14
Was sick to my stomach this morning when I woke up so finally broke down and took a compazine (sp). It helped somewhat.
Today was my "day off". No chemo today. Just a check up with the N.P and the doctor. The doctor said all is well and she is happy with the way I am going. So I will rest in that.
I am still taking astragalus, milk thistle & nettle on the side. Gotta protect myself from the chemo!
Today will be my last day for the steroids. I am also on anti viral, bacterial and fungal meds. If I think of it, I'll add the med names to a post.
It's 3 in the morning and i've been up for an hour. Insomnia is no fun!
Tomorrow is the actual stem cell transplant. I should be in there about 4 hrs I guess.
Today was my "day off". No chemo today. Just a check up with the N.P and the doctor. The doctor said all is well and she is happy with the way I am going. So I will rest in that.
I am still taking astragalus, milk thistle & nettle on the side. Gotta protect myself from the chemo!
Today will be my last day for the steroids. I am also on anti viral, bacterial and fungal meds. If I think of it, I'll add the med names to a post.
It's 3 in the morning and i've been up for an hour. Insomnia is no fun!
Tomorrow is the actual stem cell transplant. I should be in there about 4 hrs I guess.
Nov 13
I get weighed every time I got in and I see why now. I was up like 5 pounds overnight! Now I like to eat, but I don't think I ate enough to pack on 5 pounds over night!
The N.P. wasn't alarmed. Given the steroids and extra i.v. fluids I had yesterday. She did give me a low dose lasix pill to take when I got home. Oh, and I am still required to fill out that crazy I & O sheet every day.
Today was just more of the same meds as yesterday.
The N.P. wasn't alarmed. Given the steroids and extra i.v. fluids I had yesterday. She did give me a low dose lasix pill to take when I got home. Oh, and I am still required to fill out that crazy I & O sheet every day.
Today was just more of the same meds as yesterday.
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