Sunday, October 13, 2013
Oct 13
No more revlimid! No more dex! Yay! Yesterday was my last day for those meds. Maybe now I can get a decent nights sleep.
Friday, October 11, 2013
Oct 7 & 8th
Well, today Jillian and I go to Vanderbilt for my evaluation for the SCT.
5:00 a.m. I fell getting out of bed! I went down like a ton of bricks, too. I was stunned. But to Vanderbilt I go!
11:30 - Labs in a small office with LPN, took about 20 vials of blood. she started with the right arm & had to go to the left to get enough blood. exiting the right arm was extremely painful! she apologized for hitting a nerve
12:30 - meeting with financial office Actually the lady cam to the LPN's office and discussed my insurance while I was giving blood. i like that. very efficient.
1:00 - met with social worker, Kelly. what a sweet lady! gave me papers on foundations that give financial aid
3:00 - echo
4:00 - ekg
Had all my tests and everything went well. Most of the time we were early to the test and were taken right in.
the 8th
8:45 - LFT - silly guy giving the test but at least he was friendly
10:00 - skeletal survey done old school with individual x-rays over my whole body. i asked why and the tech said the tubes give you 10X 's the radiation as the individual x-rays do. didn't know that
10:00 meeting with N.P. and doctor
We only had one snaffu. We went back up to the second floor where the doctors office is and I sat in the waiting room and Jillian went to sign me in. Well, she said she went to the sign in counter and one lady was busy and another lady volunteered to sign me in. So back to the waiting room Jillian went.
That was at 11:00. Forty five minutes later, the original sign in lady who was busy, came to the waiting room to tell us the N.P. was looking for us! Kook kook lady NEVER signed me in! Jillian was livid, but held her tongue.
I finally got to see the N.P. then the doctor. They went over everything, all my tests results were positive and gave my a calender of events for my SCT.
We got out of the Tuesday at about 1:00. We stopped at the grocery store and got snacks and a chicken sandwich and off we went to Knoxville.
All in all it was a great 2 days. Jillian is such a great help. She wheeled me all around that place and buddy we were all over that place!
Saturday is my last revlimid day. Then I will have a couple weeks medicine free! Yay!
I go back Oct 22.
5:00 a.m. I fell getting out of bed! I went down like a ton of bricks, too. I was stunned. But to Vanderbilt I go!
11:30 - Labs in a small office with LPN, took about 20 vials of blood. she started with the right arm & had to go to the left to get enough blood. exiting the right arm was extremely painful! she apologized for hitting a nerve
12:30 - meeting with financial office Actually the lady cam to the LPN's office and discussed my insurance while I was giving blood. i like that. very efficient.
1:00 - met with social worker, Kelly. what a sweet lady! gave me papers on foundations that give financial aid
3:00 - echo
4:00 - ekg
Had all my tests and everything went well. Most of the time we were early to the test and were taken right in.
the 8th
8:45 - LFT - silly guy giving the test but at least he was friendly
10:00 - skeletal survey done old school with individual x-rays over my whole body. i asked why and the tech said the tubes give you 10X 's the radiation as the individual x-rays do. didn't know that
10:00 meeting with N.P. and doctor
We only had one snaffu. We went back up to the second floor where the doctors office is and I sat in the waiting room and Jillian went to sign me in. Well, she said she went to the sign in counter and one lady was busy and another lady volunteered to sign me in. So back to the waiting room Jillian went.
That was at 11:00. Forty five minutes later, the original sign in lady who was busy, came to the waiting room to tell us the N.P. was looking for us! Kook kook lady NEVER signed me in! Jillian was livid, but held her tongue.
I finally got to see the N.P. then the doctor. They went over everything, all my tests results were positive and gave my a calender of events for my SCT.
We got out of the Tuesday at about 1:00. We stopped at the grocery store and got snacks and a chicken sandwich and off we went to Knoxville.
All in all it was a great 2 days. Jillian is such a great help. She wheeled me all around that place and buddy we were all over that place!
Saturday is my last revlimid day. Then I will have a couple weeks medicine free! Yay!
I go back Oct 22.
Friday, October 4, 2013
10-4
Boy, my feet! They still hurt and feel weird. Like someone pumped them full of Novocaine.
I haven't had a smoothie for at least a week. Usually I have one every morning. Now I'm payin' the price. My mouth is FULL of thrush!!!
I rinsed my mouth out with thyme tincture, took some garlic and had 2 smoothies today!
Oh, guess what I found out? The reason my legs look like cottage cheese jello is the dex is eating away at my muscles. Why don' the doctors tell you this!? I could have been eating extra protein or something. I don't get it.
So tomorrow I'll start doing more protein eating, and start walking around the backyard.
Monday I go to Vanderbilt for 2 days of testing to see if I can proceed with the SCT. Jillian is coming over Sunday night and going up with me for the two days.
I haven't had a smoothie for at least a week. Usually I have one every morning. Now I'm payin' the price. My mouth is FULL of thrush!!!
I rinsed my mouth out with thyme tincture, took some garlic and had 2 smoothies today!
Oh, guess what I found out? The reason my legs look like cottage cheese jello is the dex is eating away at my muscles. Why don' the doctors tell you this!? I could have been eating extra protein or something. I don't get it.
So tomorrow I'll start doing more protein eating, and start walking around the backyard.
Monday I go to Vanderbilt for 2 days of testing to see if I can proceed with the SCT. Jillian is coming over Sunday night and going up with me for the two days.
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